Okay, so just about a year after being diagnosed with Emess, and experiencing no less than four flares and 50 weeks of injecting myself with a weekly dose of poison, a new drug is forced on me. Okay, so the husband had been reading about this great new drug, BG-12, for months and months, and always brought it up at every visit to each of the neurologists I see. A drug, in trials. Being used in a milder form in the UK to treat psoraisis. The doctors are always excited to talk about this new treatment a/k/a DMD (Disease Modifying Drug). Who knew? DMD. Hmm. Just another acronym in the life of a military spouse. Yet another acronym for me to remember. Did I mention that it is extremely difficult for me to remember anything? Don’t worry, the doctors both said that is a pretty common symptom for some people with MS. And, they also said that sometimes Emessers can experience a regain of their short term memory. So, this new medicine, the doctor giggles, has a really funny name it will be marketed under when it is finished with Stage 3 of trials and after it is approved by the FDA. That’s the Food and Drug Administration (another acronym). It will be called Tecfidera. Doc says she questioned the drug rep in her office why a drug’s name would rhyme with etcetera? Lol. Haha. Then, she pronounces phonetically for me, the correct way, because I did not ‘get’ what was so funny the first time she said it. It sounds like this: Tech-fid-aira. There. Tecfidera. Again, she giggles and tells us (but only looking at my husband) that the drug rep explains that they gave it this name so it would have a Euro/International aire about it, so it could easily be recognized worldwide and easy for people from every nation to pronounce. Wow. Someone got paid to come up with a name to literally appeal to worldwide audiences. Not exactly Chanel, Gucci, Levi’s, or McDonalds, but people will recognize it. Worldwide. This is the same visit where the doctors tells us (but only looking at my husband) that MS is just as common as diabetes. Really? I ask. As many people have diabetes? Wow. Then how come I only know of three other people (2 of which are relatives–one from my mom’s side and the other from my dad’s side) that have MS, and at least FORTY people who have diabetes. She smiles sweetly, and tells me really, it is that common.
Good or not, seems like I can feel the blood vibrating through my veins. All the time. More so, when I’m stressed or tired. I try to explain this to the doctor, and she looks at me with her eyebrows raised and a half of smile. Really? There’s that word again. Wow, I have never heard any of my patients describe it quite like that before. I get it. So, I told her how it is. Imagine if you will, resting your hand atop some good old fashioned amped up stereo speakers–kind of just like the set in my family room that I don’t think my husband will ever be able to part. Now, crank Led Zeppelin. Kashmir. Crank it up baby. Feel that vibration under your hand that permeates and reverberates through your whole self? It’s just like that. So, when I say I can feel my blood boiling. Or, if I say, this tingling is driving me nuts. That’s what I’m talking about.