Article of Irony and a New Doctor

The fact that I open my browser and there is a link suggested regarding an MS article is nothing new.  Trackers have a way of knowing way too much about a person.  The irony of this article being the one of today’s click is that I just got back home from an appointment with a new, unsolicited, Internist.   Yes, TriCare switched PCMs on me yet again.

Well, this new Internist–let’s just call her ‘Noeyecontactmade’–did not even look at me when I entered her examining room.  In fact, her eyes stayed glued to her computer monitor even while she introduced herself me.  I had made the appointment for prescription refills, so she knew to ask me which prescriptions I needed new scripts for.  One was for thyroid medication and the other for 800mg Motrin (horse-sized pills).  Probably the top two meds which help me put my feet on the floor every morning.  She did some reading about me…..listened to my heart for no more than 2 seconds–so I am sure it was not possible to even pick up on whether or not I had a steady rhythm–then sat back down typed some more.  She looked over her shoulder, told me it was nice to meet me (yeah, right) and that she put the Rx I asked for in the system to be picked up at the pharmacy.

While she was reading about me, she had to have seen that I have an incurable disease, and perhaps maybe that triggered a lightbulb in her head as to why I take so many other meds, and to perhaps ask me why I even need 1,600mg of Motrin a day?  Nope.  Nadda.  Nothing.  No questions asked.   Take care; comb your hair.  I was there for the Rx and the Rx only.  She made that crystal clear.   I don’t really give a flying fuck, because she is a Resident here at the Army hospital and I know she’ll rotate out of here soon only to be replaced by another doc without any prior experience of having a good bedside manner.  I wish my neurologist would just prescribe the darn Synthroid like my former neuro did.  I can’t be bothered with this crap of going to these kid doctors whose only goal is to see the most patients in one day so that they can win the contest amongst their Resident peers.   TriCare: Quit wasting my time.

I walked out chuckling in disbelief.  I hope I never have to see that asshole punk Resident again.  Big fucking deal.   I hope the Surgeon General of the Army sends me a survey to fill out about this office visit.  And, I hope she does not include me in the tally of how many patients she saw today, because the bitch never looked me in the eye–making it impossible to include me as a patient she ’saw’ today.  So, here’s this article preaching about the importance of being your own best advocate when it comes to medical treatment.  No shit.  I’d probably be in a wheelchair, bald and have that thyroid disease brain fog rolling with me wherever I went if I were not the best darn advocate for myself.

MS Patients Must Take Charge of Their Care to Avoid Medical Mishaps.

Is It Obvious?

So, I just happened to glance up at my blog name and header.   If you ask me (go ahead, ask), how long its been since I’ve sat at my sewing machine, I would tell you that I am there quite frequently.  When I glance back at the past two years’ posts, I’ve written nothing about quilting.  In fact, I don’t think I’ve even posted on the subject in at least four years!  Yes, I am still the hobby quilter I’ve proclaimed myself to be, but I’ve turned into more of a sporadic quilter.  Another thing I’ve noticed and may have written about eons ago, is that quite a ridiculous amount of unfinished quilts are lying about around here.  I think I’m up to twelve or one or two more than that, which is definitely more than I’ve ever written or spoken about.  I could use some help getting those to completion.

Sometimes, I think that I would benefit greatly from a life coach.  But not just the type that I would visit once a week or so, but more like the type of coach who could be here to accompany me all day and she would carry a stopwatch and be forever steering me in the right direction.  I need to be kept on a short leash (I have dogs so I can’t help but use that phrase).  Seriously, my kids are disasters with their personal stuff, and at this moment, there are stacks of clean, folded clothes longing to be put away, but they can’t.  The drawers in the kids’ rooms are hideously overstuffed with rumpled up mounds of everything.  When I do organize their drawers (at least twice a year), the kids “ooh” and “ahh” for a few days and when the novelty of knowing exactly where everything is wears off, they are back to shoving and turning over and digging to ensure that all of my beautiful folding handiwork is destroyed.  A life coach would help me manage my time and my kids’ time properly so we are all on a regular schedule of organizing our clothing and other essentials.  I use the term ‘we’ loosely; my kids don’t do shit on their own unless I’m standing over them furiously pointing out what needs to be picked up, thrown out, put away or burned.

A life coach would be with me in my sewing room (which I really love being able to refer to it as such) steering and directing me to stay on track while aiming to finish everything before I start anything new.  I try.  I plan.  I envision what it would be like, but still, I get sidetracked and my creativity conquers all sense of priority and I wind up spending time choosing and cutting up fabric for hours and then spend weeks turning it into something amazing and then, just before I am about to finish it, I get bored with it and set it to the side.

So, I wonder, is anyone reading this crap, and has it been blatantly obvious that I have not written about what I enjoy doing most?  I was not even aware of it until this evening.  Maybe a lower level of consciousness prevents me from mentioning my embarrassing habit (no, it’s more like a character flaw.  Maybe it has become obvious that I should remove the header that reads “A hobby quilters journey with MS,” and replace it with “A persistent un-finisher’s journey with MS.”  Maybe.

P.S.–I just proofread this, and I am so pleased that I did not once mention how that fuckin’ disease made me feel today.

Wild acquire Bryzgalov, with Backstrom shut down – The Washington Post

Wow, the writer of this article certainly found a disparaging way to report recent changes to the Minnesota Wild lineup (by the way, we are fans of  hockey in this house–always rooting for the NY Islanders or whichever team is playing against the NJ Devils).  I posted an earlier article which I found to be spirit-boosting for myself and perhaps other MSers would find it that way as well.  The article gave a brief, uplifting synopsis about the goalie for the Minnesota Wild, Josh Harding–a recently diagnosed MSer–having an incredible season.  Wait…(do you hear the arm of the record player loudly scratch across his gold album?)…today, the Washington Post shamelessly ‘prints’ this article– shamelessly written by Dave Campbell of the Associated Press–which is struggling to completely blow the role model image I see in Josh Harding.  Shame, shame.  Yes, the writer does in fact claim that the General Manager of the team, Chuck Fletcher said, “Backstrom (the backup goalie to Harding) nor Harding will be healthy enough to mind the net again this season…” (I just heard another loooong scratch across a record album).  Could these be the manager’s true words, or are these words simply strung together by the writer?  Shame again,  if this were crafty writing tactic to completely shed a negative light on all those mentioned in the article.  The other player, Backstrom, is rehabing from severe player-related injuries and of course, Harding, is in the midst of “his best season ever” proudly showing the world that MS can just fuck off and die.   If the written words are true, did Fletcher really state that Harding will “probably finished in the fall, too,” ?  How dare he speak on behalf of Harding?  If there is anything a disease inflicted person would despise more, it would be hearing (or reading) someone else speaking on their behalf in a negative tone.  His slanderous choice of words could be career ruining for this guy who is boldly and publicly working to defy the crushing force of MS.  Again, if these words are true, I hope that Harding uses our justice system well to keep him from ever spewing such harsh words in the future.  Just because a sports figure, or anyone else, went public with his or her diagnosis, it does not mean that it is okay for their employer (or the Wild’s General Manager, who represents this team/employer/NHL) should publicly announce how they project their employee’s personal business will affect business.

Wild acquire Bryzgalov, with Backstrom shut down – The Washington Post.